The parliamentary committee on gender, labour and social development on 19 July, 2017 tabled a report on the impact and management of Nodding Syndrome in Northern Uganda.
The committee found that:
- little effort has been put into research about the cause of Nodding Syndrome, 18 years after it was first discovered in Northern Uganda;
- there is widespread misconception about the cause of Nodding Syndrome and how it is spread;
- looking after children affected by Nodding Syndrome is a full-time job, making the parent unable to fulfill other duties and responsibilities;
- treatment of Nodding Disease Syndrome requires a complete health care package which includes medical and nutritional therapy, physiotherapy, full-time attendants and properly functioning health care system, all of which are in short supply in the region; and
- the two existing rehabilitation and treatment centres for Nodding Syndrome are privately-owned, donor-funded and operating below capacity.
The committee recommended that the Government of Uganda should take the primary responsibility for treatment and management of the disease.
Read online or download the full report below.